After nearly five years of dreading the possibility of a big seizure every single day, tonight I can report a joyous seizure, if you can call it that.
Around 9PM, Cam petered out and went to bed. He’d been up since 4:30, so it’s not surprising. About 10 minutes later, I heard some adjusting and saw the look of his head turning into what I thought was a partial seizure. I grabbed the alarm to alert the nurses and by the time the first two got there, the event progressed into a full blown clonic/tonic seizure.
I’m in tears writing this.
Hopefully this data tells his teams something, anything, to either confirm the subclinical data they have, or helped highlighted other area(s) of interest. I’ll be eager to see what the docs say in the morning.
After about an hour, he’s finally back asleep. He had a little pain, but not a lot. His nurse and I were able to position him in his bed well enough to prevent his shoulder from having too many issues. He did wet himself a bit, but we were able to change him pretty easily as well.