We got home around 4:30. We had to stop and get a late lunch at Chick-Fil-A to get him some Mac and cheese.
This will be my last update for now. When we get the laser surgery scheduled and get close to that surgery, then I’ll start back up again.
Finally discharging
There was a lack of communication between our doctor and the nurses regarding a new medication Cameron was supposed to start and so we’ve been waiting for hours just playing now our phones.
But they are taking his vitals now and we should be leaving shortly.
Almost done
Last round of antibiotics is in. Waiting for IV would to stop bleeding and then he will shower. Then just need final paperwork and we can go home!
Discharge Day!
The whole team is getting Cam ready for discharge. He had an uneventful night and seemed to sleep OK.
We are starting to get breakfast, get morning medications, and trying to get all of his orders all wrapped up. Hopefully we can bounce out of here is a few hours.
He can’t wash his hair until Friday, although they did wash it in post-op. He is able to stay home from school the rest of the week as well, to rest and recover.
Back to Normal
That means he’s back to being angry at me, which is the usual lately.
He is back in his main room and is able to play video games and start to sip liquids and eat a cracker or two, which is a big first step. He’s had some morphine just to help with the probe wounds, which are irritating him.
Overall, things went as expected. Just have to wait things out until the morning for discharge.
In Recovery
His probe sites are bothering him a lot and there is a young child in the bay next to us who is crying and irritating him so we are trying to get him back to his PEMU room ASAP. He looks good and is just real tired.
Procedure Over
Just waiting for word on when I can go back to the recovery room. Just need to work with the surgeon’s office on scheduling the laser ablation later on. I’ll likely call on Friday.
Removal underway
About 20 minutes I left him in Pre-Op. Cam is tired and a bit hungry but he’s also ready to go home.
Prepping for removal
They are removing all the wires from Cam’s head now. All that is left is the probes. We will have to do one more antiseptic wide down and change of gown.
Morning Update
The ‘normal’ docs came around and as I started typing, his usual specialist, Dr. Williams also checked in.
He’s actually on IV fluids now, hoping to get him into the OR around 1PM, based on schedules and stuff, so there is that. Cam is still sleeping, so I am hoping he stays that way awhile to rest and not have time to worry about food.
The great news is that the new partial from last night looked similar to the previous one, which helps give us comfort that we have the right areas to go after and that they are consistent.